Medical Leave Fund for Jesse’s Double-Lung Transplant
Update: Jesse is officially active on the lung transplant waiting list with a lung allocation score (LAS) of 38.859
Jesse’s family was planning on 2017 being a year to rebuild and bond as a family of four after 5 years of fostering and two years of back-to-back legally contested adoptions drained us mentally and financially. Plans changed when a January clinic visit showed his lung function at 22% and he missed the better part of 5 weeks of work with a hospital stay, home IVs, and many doctor’s appointments.
They were hesitant to open up this donation campaign after they received hundreds of peoples’ generous gifts in 2016 for their second adoption, but were encouraged to do so by family who is also willing to assist.
The family currently has a small emergency fund and they fully expected that their work-from-home business would allow him to work right up until transplant. That no longer seems to be a reasonable expectation, as the decline to reach transplant status has made concentrating and doing the actual work much more of an effort than Jesse ever imagined.
They felt that they were entirely prepared for a quick medical leave after surgery but not any decreased work beforehand, which looks like it could be weeks or months waiting on the transplant list.
He is currently pushing it to see some semblance of normalcy but is hitting about 33% of his usual productivity. For his health, he needs to back that down to about 25%. Work 2hrs/day, rest with quality time, and eat for strength, and nap a lot as his oxygen saturation remains lower than normal. There is work waiting to be done – it’s a matter of having the energy to complete the contracted work.
Kristin was willing to get a job to make up the difference but her family members shot that down because she is his primary support person and is taking care of the boys full time. If she leaves home to work, Jesse is left caring for the boys, doing school car drop-offs, and numerous trips upstairs with their toddler.
Jesse is still focusing on his WordPress theme and plugin shop, GenesisThe.me, and has two products for sale with two ready for launch by the end of March to supplement his client work and hosting recurring revenue, but there will be a shortfall with continued work hours at this level.
Would you consider giving to their needs and come alongside them to give Jesse the best scenario for a successful transplant?