If you already read the last actual medical update “Change of Plans, Again,” you know that my PFTs are still very low after finishing home IVs and that we are in the process of getting listed. I have already seen the dermatologist, dentist, and optometrist for their required parts. Having two fillings done today and am going to schedule a punch biopsy of the only spot the dermatologist found just to be sure and done with any possible skin cancer concerns.
Our script for getting Boost Plus was denied unless it’s provided as a medical benefit such as supplies for a feeding tube. I’ve been putting monumental efforts into gaining weight and am up 4-7 pounds by evening, but it’s exhausting me to do so… and we know Dr. Patel is talking more like gaining 30-35 pounds. So I’ve decided to swallow my pride and go ahead with a GJ Tube for night feedings and hopefully get 2200-3000 calories per night.
I’m a bit giddy thinking about gaining weight that easily, but I’m also very sad that my body has gotten to this point. I made this image back around 2010 at my highest weight and before kids. It’s laughable that I was stating that I was “easily tired – every day.” Ha! Insert note to future self there.
Eating has always produced results for me. Eating has more or less been enjoyable unless I was bulking. My appetite was never far away, and neither was my next chance to eat. That’s not how it works any more. When I’m stressed, I don’t want to eat. I don’t often have an appetite.
Once we finish our estate plan and see what my next set of vitals are at clinic, we’re ready to get listed.
I’m tired, exhausted, really. Never been so much in a state of perpetual napping in my life, even with all the newborns we’ve had. I’ve been getting a solid 8-9 hours of sleep per night and still sleeping anywhere from 1-3 hours during the workday.
Between my lower O2 saturation and all of the planning stress seeing all of my required doctor’s appointments and getting our personal and business affairs in order, I’m having extreme difficulty concentrating on work, let alone coding. I did successfully start coding yesterday. I wasted over an hour trying to sort out something of a junior front-end developer level and suddenly realized my error in using the wrong property… one that I’ve known for years but was glossing over.
I’ve got more than enough work coming and working on some long-term support contracts that I can do without long sessions at a time at my desk. Still need to get the revenue going because the work is there just waiting to be done… before people get upset by delays just because I’m napping and can’t think.
That about sums it up.